Patient Privacy Rights is playing an essential role in the developing information economy with their campaign against Oprah Winfrey’s promotion of RealAge.com.
I’m not an Oprah-watcher, but apparently she’s been having a guest on named “Dr. Oz” – where does she get these people? – who shills for a site called RealAge.com. RealAge entices visitors to take a 105-item questionnaire about their personal health habits. The people who agree to be “members” receive, among other things, promotions from drug companies that are tailored to their potential health issues.
Patient Privacy Rights doesn’t like this, and they make a good case that RealAge, “Dr. Oz,” and Oprah should give people a better idea of what’s going on with personal information in this little transaction.
My own review of the RealAge privacy policy shows it to be a pretty good, typically complex policy that restricts information sharing pretty well. If I was interested in anything other than destroying my health with booze and cigarettes, I might be inclined to take RealAge’s quiz. It has real potential to educate people and get them informed about health conditions and treatments. But Patient Privacy Rights would like that to happen with a little more awareness all around about the personal information terms of this bargain.
The brilliant thing, from my perspective, is that PPR is taking it to the people with a petition rather than running to mommy government, embodied by the Federal Trade Commission. That’s the straightforward way to work on shaping the marketplace, convincing consumers themselves rather than relying on the threat of government coercion.
The Technology Liberation Front is the tech policy blog dedicated to keeping politicians' hands off the 'net and everything else related to technology.